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Displaying records 1 through 9 of 9 found. Sorted by

Life Course Health Development of Individuals with Cerebral Palsy. Year Developed: 2017. Source: UCLA Center for Healthier Children, Families & Communities, Maternal and Child Health Life Course Research Network (LCRN). Presenter(s): Briano Di Rezze, PhD; Matthew Freeman, MA; Robert Palisano, PT, ScD, FAPTA; Debra Stewart, MSc, OT Reg. (Ont.). Type: Webinar. Level: Introductory. Length: 15:05 minutes.

Annotation: Together these researchers from the CanChild Centre for Childhood Disability Research share their interpretive description of lifecourse health development of individuals with cerebral palsy to promote developmental capacities for future roles and healthy adult living beginning in childhood.

Improving Systems of Care for Children and Youth with Special Health Care Needs and Autism Spectrum Disorder. Year Developed: 2017. Source: National Conference of State Legislatures. Presenter(s): Tahra Johnson; Michelle Jarvis; Shawna Wright; Thomas Holmes; Susan Lontine. Type: Webinar. Level: Introductory. Length: 58 minutes.

Annotation: Children and youth with special health care needs (CYSHCN) are defined as children who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally. For this population of children, there are often barriers to accessing treatment from a shortage of providers to lack of coverage. This webinar explores barriers to accessing care and discusses strategies that states can implement to improve systems of care for Children and Youth with Special Health Care Needs (CYSHCN) and those with Autism Spectrum Disorder (ASD).

Statistical and Epidemiological Framework for Public Health Analyses. Year Developed: 2015. Source: Health Resources and Services Administration, Maternal and Child Health Bureau; Centers for Disease Control and Prevention; CityMatCH. Presenter(s): Deb Rosenberg, PhD. Type: Narrated Slide Presentation. Level: Intermediate Advanced. Length: 77 slides. Audio

Annotation: This pre-course webinar for the 2015 Training Course in MCH Epidemiology provides an overview of MCH epidemiology including the basics of analytic methods, the sampling framework, and the epidemiologic framework.

Engaging and Partnering with Culturally and Linguistically Diverse Communities. Year Developed: 2015. Source: National Center for Cultural Competence. Presenter(s): Wendy Jones, Barbara Hueler. Type: Webinar Archive. Level: Advanced. Length: 90 minutes.

Annotation: Establishing and sustaining broad-based community partnerships in support of the full inclusion of and equity for individuals with intellectual and developmental disabilities (I/DD) present myriad benefits while simultaneously presenting unique challenges. Many organizations and programs within the I/DD network continue to struggle with engaging communities in a culturally and linguistically competent manner. This forum explores the experiences of organizations in Arizona, California, and Maryland in their successful initiatives to engage African American, Chinese, and Latino/Hispanic communities in support of people with intellectual and development disabilities across the lifespan.

Learning Objectives: • Examine the conceptual frameworks, values, and practices of cultural and linguistic competence within the context of community engagement. • Describe approaches and strategies to engage diverse communities to plan, implement, and evaluate services and supports for individuals who experience developmental and other disabilities and their families. • Reflect on the role of leadership in bringing about organizational and system change.

Engagement of Family Leader Organizations in Non-CSHCN Initiatives. Year Developed: 2015. Source: National Center for Family Professional Partnerships. Presenter(s): Malia Corde, Amy Nienhuis, Jane St. John, Susan Bird. Type: Webcast. Level: Intermediate. Length: 53 minutes.

Annotation: Family involvement is essential to the successful development and adoption of health-related programs that affect families. Family engagement is now being measured across MCH systems and not just within programs for children with special health care needs (CSHCN). Family organizations serving families of CSHCN are already actively engaged in partnerships around how to promote family engagement in health care beyond CSHCN populations. This webinar was a panel presentation of three Family to Family Health Information Centers (F2Fs) and Family Voices State Affiliate Organizations (FV SAOs) highlighting examples and lessons learned from their successful partnerships and collaborations on Non-CSHCN initiatives. Speakers: Malia Corde of New Jersey's Statewide Parent Advocacy Network (SPAN) will highlight three projects, funded through the NJ Department of Health and NJ Department of Human Services, that focus on improving pregnancy outcomes and the prevention of birth defects and developmental disabilities. Amy Nienhuis of Family Connection in South Carolina will discuss elements of her organization's state contract with the South Carolina Department of Health and Environmental Control that reach beyond CSHCN populations. Jane St. John and Susan Bird of Missouri Family to Family will highlight an evolution of partnerships with stakeholders including Missouri's Early Childhood Comprehensive Systems and Maternal, Infant, and Early Childhood Home Visiting which have resulted in increased family involvement in several initiatives across the state.

Addressing Disparities and Disproportionality in Systems Serving Individuals with Intellectual and Developmental Disabilities. Year Developed: 2015. Source: National Center for Cultural Competence. Presenter(s): Diana Autin, Tawara D. Goode, Andy Imparato, Thomas Uno. Type: Webinar Archive. Level: Advanced. Length: 90 minutes.

Annotation: This forum explores contributing factors to disparities and disproportionality and what three organizations are doing at the policy and practice levels to mitigate them. It begins with a discussion on how, when compared to non-Hispanic Whites, members of other racial and ethnic groups continue to be adversely impacted by health and health care disparities. It continues by exploring the overrepresentation of students primarily African American and most recently Latino in special education and children and youth with disabilities (across racial and ethnic groups) who are disproportionately placed in this nation’s juvenile justice system.

Learning Objectives: • Define and differentiate between health and health care disparities. • Define disproportionality and overrepresentation. • Cite the impact of disparities and disproportionality on individuals with disabilities and their families. • List three approaches to combat or mitigate health/health care disparities and disproportionality in education and juvenile justice. • Reflect on the role of leadership in bringing about change.

Improving the System of Services for Children and Youth with Special Health Care Needs: Findings from a Review of the State Implementation Grant Program. Year Developed: 2012. Source: U.S. Maternal and Child Health Bureau. Presenter(s): Lynda Honberg; Kathleen Watters. Type: Narrated Slide Presentation. Level: Intermediate Introductory. Length: 90 minutes.

Annotation: This presentation provides a broad overview of the nature and needs of the population of children and youth with special health care needs (CYSHCN) within the context of MCHB’s values and tenets for the system of care. Specific topics covered include definition of the population; the legislative and policy basis for the Title V (SSA) role in serving the CYSHCN population; and concepts and components of systems building, including quality and accountability/measurement. Parent, federal and state policy perspectives are incorporated into the presentation narrative, as well as examples of states’ systems endeavors. The 60 minutes of presentation is followed by a 30-minute Q&A discussion.

Special Instructions: Listeners may wish to toggle to 00:5:05 on the video time stamp as the beginning segment involves only participant introductions.

The Affordable Care Act and Children with Special Health Care Needs: An Analysis and Steps for State Policymakers. Year Developed: 2011. Source: National Academy for State Health Policy and the Catalyst Center. Presenter(s): Carol Tobias; Meg Comeau; Kathleen Farrell; Catherine Hess; Liz Fowler; Linda Peltz; Phyllis Sloyer; Steve Fitton. Type: Narrated Slide Presentation. Level: Intermediate Introductory. Length: 90 minutes.

Annotation: This webinar focuses on the Affordable Care Act (ACA) as it relates to children with special health care needs (CSHCN) or children that are at-risk for chronic conditions that require more services than typical children. The speakers identify CSHCN-specific needs with respect to 1) universal, continuous coverage, 2) adequate coverage, and affordable coverage. For each of the three broad topics, relevant statutory and regulatory provisions are identified and explained, followed by discussion of opportunities and challenges. Steps state policymakers should consider to address needs of CSHCN in health reform are discussed. A companion report can be found at: http://www.catalystctr.org.

The Care Coordination Conundrum. Year Developed: n.a.. Source: The Care Coordination Conundrum. Presenter(s): n.a.. Type: n.a.. Level: Introductory Intermediate. Length: n.a..

Annotation: In a new report funded by the Lucile Packard Foundation for Children's Health, ​The Care Coordination Conundrum and Children and Youth with Special Health Care Needs, authors Sara S. Bachman, Meg Comeau, and Katharyn M. Jankovsky of the Catalyst Center at the Boston University School of Public Health discuss why care coordination has been insufficiently financed and reimbursed to date, and what can be done to address the many challenges of providing and paying for care coordination for children with special health care needs.​​

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number UE8MC25742; MCH Navigator for $180,000/year. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.