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Displaying records 1 through 10 of 12 found.

A Conversation on Ethical Considerations for a Fair and Effective Health Care System. Year Developed: 2018. Source: Lucile Packard Foundation for Children's Health. Presenter(s): Chris Feudtner, MD, PhD, MPH; Grace Oei, MD, MA; Chaplain Mark Bartel, M Div, SCC. Type: Webinar Archive. Level: Intermediate. Length: 59 minutes.

Annotation: What ethical considerations should guide the design and evaluation of systems of care for children with medical complexity? There are inevitable tradeoffs that any complex health care system must confront when attempting to achieve multiple worthy goals, from benefitting individual patients and families and securing fair distribution of benefits across populations, to operating in a manner that is transparent and free from conflicts of interest. Discussing the article, Ethical Framework for Risk Stratification and Mitigation Programs for Children with Medical Complexity, the panel shared recommendations that help ensure programs for children with medical complexity avoid potentially ethically problematic situations and practices. A video and presentation slides are available.

Life Course Health Development of Individuals with Cerebral Palsy. Year Developed: 2017. Source: UCLA Center for Healthier Children, Families & Communities, Maternal and Child Health Life Course Research Network (LCRN). Presenter(s): Briano Di Rezze, PhD; Matthew Freeman, MA; Robert Palisano, PT, ScD, FAPTA; Debra Stewart, MSc, OT Reg. (Ont.). Type: Webinar. Level: Introductory. Length: 15:05 minutes.

Annotation: Together these researchers from the CanChild Centre for Childhood Disability Research share their interpretive description of lifecourse health development of individuals with cerebral palsy to promote developmental capacities for future roles and healthy adult living beginning in childhood.

Improving Systems of Care for Children and Youth with Special Health Care Needs and Autism Spectrum Disorder. Year Developed: 2017. Source: National Conference of State Legislatures. Presenter(s): Tahra Johnson; Michelle Jarvis; Shawna Wright; Thomas Holmes; Susan Lontine. Type: Webinar. Level: Introductory Intermediate. Length: 58 minutes.

Annotation: Children and youth with special health care needs (CYSHCN) are defined as children who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally. For this population of children, there are often barriers to accessing treatment from a shortage of providers to lack of coverage. This webinar explores barriers to accessing care and discusses strategies that states can implement to improve systems of care for Children and Youth with Special Health Care Needs (CYSHCN) and those with Autism Spectrum Disorder (ASD).

Systems Integration: A Parent’s Perspective. Year Developed: 2015. Source: University of California Berkeley School of Public Health. Presenter(s): Erica Monasterio, FNP. Type: Video. Level: Intermediate. Length: 25 minutes.

Annotation: This recorded lecture presents the personal perspective of a parent of a child with special health care needs of systems integration. The presentation focuses on what providers need to be knowledgeable about CYSHCN, provide care, and understand and coordinate systems in an era when there are building pressures related to pediatrician productivity.

Statistical and Epidemiological Framework for Public Health Analyses. Year Developed: 2015. Source: Health Resources and Services Administration, Maternal and Child Health Bureau; Centers for Disease Control and Prevention; CityMatCH. Presenter(s): Deb Rosenberg, PhD. Type: Narrated Slide Presentation. Level: Intermediate Advanced. Length: 77 slides. Audio

Annotation: This pre-course webinar for the 2015 Training Course in MCH Epidemiology provides an overview of MCH epidemiology including the basics of analytic methods, the sampling framework, and the epidemiologic framework.

Engaging and Partnering with Culturally and Linguistically Diverse Communities. Year Developed: 2015. Source: National Center for Cultural Competence. Presenter(s): Wendy Jones, Barbara Hueler. Type: Webinar Archive. Level: Advanced. Length: 90 minutes.

Annotation: Establishing and sustaining broad-based community partnerships in support of the full inclusion of and equity for individuals with intellectual and developmental disabilities (I/DD) present myriad benefits while simultaneously presenting unique challenges. Many organizations and programs within the I/DD network continue to struggle with engaging communities in a culturally and linguistically competent manner. This forum explores the experiences of organizations in Arizona, California, and Maryland in their successful initiatives to engage African American, Chinese, and Latino/Hispanic communities in support of people with intellectual and development disabilities across the lifespan.

Learning Objectives: • Examine the conceptual frameworks, values, and practices of cultural and linguistic competence within the context of community engagement. • Describe approaches and strategies to engage diverse communities to plan, implement, and evaluate services and supports for individuals who experience developmental and other disabilities and their families. • Reflect on the role of leadership in bringing about organizational and system change.

Engagement of Family Leader Organizations in Non-CSHCN Initiatives. Year Developed: 2015. Source: National Center for Family Professional Partnerships. Presenter(s): Malia Corde, Amy Nienhuis, Jane St. John, Susan Bird. Type: Webinar. Level: Intermediate. Length: 53 minutes.

Annotation: Family involvement is essential to the successful development and adoption of health-related programs that affect families. Family engagement is now being measured across MCH systems and not just within programs for children with special health care needs (CSHCN). Family organizations serving families of CSHCN are already actively engaged in partnerships around how to promote family engagement in health care beyond CSHCN populations. This webinar was a panel presentation of three Family to Family Health Information Centers (F2Fs) and Family Voices State Affiliate Organizations (FV SAOs) highlighting examples and lessons learned from their successful partnerships and collaborations on Non-CSHCN initiatives. Speakers: Malia Corde of New Jersey's Statewide Parent Advocacy Network (SPAN) will highlight three projects, funded through the NJ Department of Health and NJ Department of Human Services, that focus on improving pregnancy outcomes and the prevention of birth defects and developmental disabilities. Amy Nienhuis of Family Connection in South Carolina will discuss elements of her organization's state contract with the South Carolina Department of Health and Environmental Control that reach beyond CSHCN populations. Jane St. John and Susan Bird of Missouri Family to Family will highlight an evolution of partnerships with stakeholders including Missouri's Early Childhood Comprehensive Systems and Maternal, Infant, and Early Childhood Home Visiting which have resulted in increased family involvement in several initiatives across the state.

Addressing Disparities and Disproportionality in Systems Serving Individuals with Intellectual and Developmental Disabilities. Year Developed: 2015. Source: National Center for Cultural Competence. Presenter(s): Diana Autin, Tawara D. Goode, Andy Imparato, Thomas Uno. Type: Webinar Archive. Level: Advanced. Length: 90 minutes.

Annotation: This forum explores contributing factors to disparities and disproportionality and what three organizations are doing at the policy and practice levels to mitigate them. It begins with a discussion on how, when compared to non-Hispanic Whites, members of other racial and ethnic groups continue to be adversely impacted by health and health care disparities. It continues by exploring the overrepresentation of students primarily African American and most recently Latino in special education and children and youth with disabilities (across racial and ethnic groups) who are disproportionately placed in this nation’s juvenile justice system.

Learning Objectives: • Define and differentiate between health and health care disparities. • Define disproportionality and overrepresentation. • Cite the impact of disparities and disproportionality on individuals with disabilities and their families. • List three approaches to combat or mitigate health/health care disparities and disproportionality in education and juvenile justice. • Reflect on the role of leadership in bringing about change.

The ABCs of ACOs for MCH. Year Developed: 2013. Source: Association of Maternal and Child Health Programs. Presenter(s): Christopher A. Kus, MD, MPH; Colleen A. Kraft, MD, FAAP; Cate Wilcox, MPH; Don Ross; Marilyn Hartzell, MEd. Type: Video. Level: Intermediate. Length: 90 minutes.

Annotation: Covered in this webinar are the roles of Accountable Care Organizations (ACOs) in population health and how they integrate with community-based systems of care, including public health agencies, on a range of issues, such as care coordination and other MCH community services. The webinar presentations by an ACO provider, Medicaid staff, and Title V MCH and CYSHCN Directors highlight key considerations for maternal and child health populations, the role of public health in ACO implementation, and efforts to implement ACOs that have a focus on pediatric populations (particularly CSHCN).

Learning Objectives: • Increase knowledge of ACOs and ACOs that include MCH populations. • Increase understanding of how public health can play a role in ACOs. • Identify strategies and resources to collaborate with ACOs.

Improving the System of Services for Children and Youth with Special Health Care Needs: Findings from a Review of the State Implementation Grant Program. Year Developed: 2012. Source: U.S. Maternal and Child Health Bureau. Presenter(s): Lynda Honberg; Kathleen Watters. Type: Narrated Slide Presentation. Level: Intermediate. Length: 90 minutes.

Annotation: This presentation provides a broad overview of the nature and needs of the population of children and youth with special health care needs (CYSHCN) within the context of MCHB’s values and tenets for the system of care. Specific topics covered include definition of the population; the legislative and policy basis for the Title V (SSA) role in serving the CYSHCN population; and concepts and components of systems building, including quality and accountability/measurement. Parent, federal and state policy perspectives are incorporated into the presentation narrative, as well as examples of states’ systems endeavors. The 60 minutes of presentation is followed by a 30-minute Q&A discussion.

Special Instructions: Listeners may wish to toggle to 00:5:05 on the video time stamp as the beginning segment involves only participant introductions.

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number UE8MC25742; MCH Navigator for $180,000/year. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.