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Displaying records 1 through 10 of 48 found.

MCHwork: Successful Engagement with People with Lived Experience. Year Developed: 2023. Source: MCH Navigator and the National MCH Workforce Development Center. Presenter(s): n.a.. Type: Interactive Learning Tool. Level: Introductory. Length: Self-paced.

Annotation: People with lived experience (PWLE) are regarded as "experts by experience" in the scope of their first-hand experience.1 PWLE have lived (or are currently living) with issues the community is focusing on and who can offer insight about the system as it is experienced by others. Understanding of what works to address the issue based on their personal insight, what does not work, and what resources (formal or informal) are available.

Learning Objectives: • Define people with lived experience • Discuss shared understanding and organizational experiences related to people with lived experience •Explore current and historical culture of the community, and challenge MCH professionals to discover diversity by understanding intersectionality

Leading with Lived Experience: Informing Health Department Viral Hepatitis Elimination Programs. Year Developed: 2023. Source: NASTAD. Presenter(s): Eliot Davis, Tina Reynolds, Donté Smith, and Nick Voyles. Type: Presentation. Level: Introductory. Length: 75 minutes.

Annotation: This session at NASTAD's 2023 Annual Meeting is titled, "Leading with Lived Experience: Informing Health Department Viral Hepatitis Elimination Programs." During this session, panelists described how leading with lived hepatitis and substance use experience is central to advancing hepatitis elimination as they explored considerations for enhancing relationships between state health departments, CBOs, and people who use drugs. Attendees were invited to engage in discussion with peer jurisdictions, strategy leaders, and people with lived expertise about opportunities and tangible strategies for how to equitably invest in leaders with lived expertise as an essential factor to eliminate viral hepatitis.

Learning Objectives: • Establish how to create a network of partnerships that include people with lived experience. • Describe how to create the support structure to have people with lived experience lead the work.

Inclusive Research: Engaging People Closest to the Issue Makes for Better Science & Greater Impact. Year Developed: 2023. Source: National Institutes of Justice. Presenter(s): Ronald Day, Henrika McCoy, Megan Denver, Chas Moore, and Linda Seabrook. Type: Presentation. Level: Introductory. Length: 63 minutes.

Annotation: This panel will discuss what inclusive research is, how to conduct it, and what issues and challenges exist about engaging in it. “Inclusive research” has its history as a participatory research method designed to ensure people closest to the issue or problem under study are authentically engaged in the research process rather than simply being “research subjects.” While community-based participatory research has begun to take on greater prominence in the criminal justice realm, such efforts are largely confined to qualitative research inquiries. This panel makes the case that inclusive research can and should apply to a wider array of research questions and methods and that employing it can yield more accurate and policy-relevant evidence. Panelists will also engage in a “myth busting” discussion to address possible challenges to conducting inclusive research and how to overcome them.

Learning Objectives: • Outline what inclusive research is. • Illustrate how to use inclusive research. • Express how to overcome barriers.

Creating Inclusive & Anti-Ableist Triage Policies. Year Developed: 2023. Source: Disability Rights New York. Presenter(s): Laura Guidry-Grimes, Katie Savin, and David Whalen. Type: Webinar. Level: Introductory. Length: 60 minutes.

Annotation: This video was part of DRNY"s "Never About Us Without Us: Emergency Preparedness." This webinar series hosted experts nationwide; including people with lived experience, bioethicists, civil rights advocates, educators, and attorneys, to discuss the urgent need to include people with disabilities in emergency preparedness planning.

Learning Objectives: • Specify the basics of public health emergencies. • Create inclusive and anti-ableist triage policies. • Distinguish between formal triage, informal triage, and identifying ableism.

Authentic Engagement: People with Lived Expertise Shaping Homeless Programs and Policies. Year Developed: 2023. Source: Community Action Partnership. Presenter(s): Josh Johnson, Samantha Wood, La’Toya Cooper, and Jon DeCarmine. Type: Webinar. Level: Introductory. Length: 60 minutes.

Annotation: Homeless service providers and systems are increasingly turning to those with lived experience of homelessness to help shape policies and inform programmatic reforms to improve the effectiveness of their interventions in reducing homelessness. This session, presented by the National Alliance to End Homelessness, will feature individuals with lived expertise who are serving to drive policy change through authentic collaboration with advocates and providers.

Learning Objectives: • Define the problems within policies and services. • Identify key components of authentic engagement. • Recognize the importance of power building and how to shift a culture. • Demonstrate how engagement can shape programs and policies.

The Power of Lived Expertise in Research and Evaluation: Child Welfare Edition. Year Developed: 2022. Source: Administration for Children and Families. Presenter(s): Bryan Samuels, Alex Wagaman, and Tiffany Haynes. Type: Webinar. Level: Introductory. Length: 43 minutes.

Annotation: Individuals with lived experience collaborate with agencies in conducting and leading research and program evaluation findings to inform policy and practice. This video focuses on key considerations to sustain research and evaluation partnership with people with lived expertise and minimize harm, as well as offering concrete strategies to collaborate and share power with youth and families in the practice and process of data collection, research (including Participatory Action Research/Youth Participatory Action Research), and evaluation.

Learning Objectives: • Name key considerations to sustain research and evaluation with people who have lived experience. • Describe Participatory Action Research. • Employ strategies to collaborate and share power with people who have lived experience.

Learning from Lived Experience: Understanding Barriers to Recovery. Year Developed: 2022. Source: RIZE Massachusetts. Presenter(s): Daryl McGraw, Shannon DiNardo, Lisa Blanchard, and Daniel Rodriguez. Type: Webinar. Level: Introductory. Length: 70 minutes.

Annotation: By sharing the experiences of people with substance use disorders, this event illustrates the barriers to care that prevent individuals from accessing addiction treatment and recovery services in Massachusetts. RIZE & C4 Innovations discusses the challenges and solutions to improving the care experience.

Learning Objectives: • Describe experiences from people who have encountered barriers to treatment and recovery support services. • Determine how barriers to care impact people seeking treatment and recovery services. • Explain current and potential solutions to reduce barriers. • Participate in a discussion about action steps and approaches to improve the treatment ecosystem.

Building Trust Between Communities of Color and Health Care Organizations: Lessons from New York State. Year Developed: 2022. Source: Center for Health Strategies. Presenter(s): Anna Spencer, Ali Foti, Sarah Nadeau, LCSW, Ebony Colkey, Abena Ohene-Ntow, Desiree Collins-Bradley, Akeem N. Marsh, MD, DFAACAP. Type: Webinar. Level: Introductory. Length: 60 minutes.

Annotation: This Center for Health Care Strategies (CHCS) webinar highlights how two New York-based health care organizations — John R. Oishei Children’s Hospital and The New York Foundling — are engaging patients in new ways to transform their health care delivery practices. Lessons from these efforts can inform health care organizations across the country seeking to involve patients, particularly patients of color, in efforts to advance health equity. These organizations are participants in Engaging Patients of Color to Advance Health Equity, a CHCS learning collaborative supported by the New York Health Foundation.

Learning Objectives: • Describe John R. Oishei Children’s Hospital’s and the New York Foundling’s efforts to partner with patients to better understand their needs and address challenges in care delivery. • Learn about presenter's personal experiences navigating the health care system and insights on engaging patients and addressing health equity.

To Trust or Not To Trust: Understanding the Science of Developing and Nurturing Trust in Family Professional Partnerships. Year Developed: 2021. Source: The Center for Appropriate Dispute Resolution in Special Education. Presenter(s): Tracy Gershwin, Ph.D.. BCBA-D. Type: Webinar. Level: Intermediate. Length: 84 minutes.

Annotation: This webinar provides attendees with a roadmap for understanding the science of trust, including strategies that can both develop, nurture, and repair trust between families and professionals. It outlines how researchers have documented new, ongoing, and growing conflict between families of students with disabilities and the professionals who serve them. The presenter explains that the majority of these challenges begin with a lack of trust, that has either never existed in the partnership or deteriorated as a result of a breakdown in communication, incompatible goals, and/or misunderstanding between parties. The webinar reinforces that trust is one of the most commonly mentioned partnership barriers discussed in the literature. Despite this acknowledgment of trust, the science of understanding, developing and nurturing trust is rarely defined, or described in a way that supports conflict prevention or resolution between families and professionals.

Learning Objectives: • Define trust for the family-professional partnership. • Understand the importance of trust. • Identify the barriers to trust. • Describe the relationship between trust and conflict. • Apply strategies used to develop and nurture trust.

Promoting Use of Childhood Dental Benefits Covered Under Medicaid and CHIP to Catch Up on Care. Year Developed: 2021. Source: InsureKidsNow.gov. Presenter(s): Natalia I. Chalmers DDS, MDSc, PhD. Type: Webinar. Level: Introductory. Length: 54 minutes.

Annotation: In this webinar, Dr. Natalia I. Chalmers, D.D.S., M.H.Sc., Ph.D., a pediatric dentist and Diplomate of the American Board of Pediatric Dentistry, who also served as Dental Officer within the Center for Medicaid and CHIP Services at the Centers for Medicare & Medicaid Services, discusses trends in oral health services among those enrolled in Medicaid and CHIP and how early intervention can promote oral health outcomes among children. Campaign resources organizations can use in outreach and enrollment efforts to promote oral health year-round, including print materials, social media posts and graphics, newsletter articles, were featured.

Learning Objectives: • Learn the impact of poor pediatric oral health. • Explore why dental coverage and access matters. • Learn the role of parents in children's oral health coverage and access.

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number UE8MC25742; MCH Navigator for $225,000/year. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.