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Displaying records 1 through 5 of 5 found.

MCHwork: Successful Engagement with People with Lived Experience. Year Developed: 2023. Source: MCH Navigator and the National MCH Workforce Development Center. Presenter(s): n.a.. Type: Interactive Learning Tool. Level: Introductory. Length: Self-paced.

Annotation: People with lived experience (PWLE) are regarded as "experts by experience" in the scope of their first-hand experience.1 PWLE have lived (or are currently living) with issues the community is focusing on and who can offer insight about the system as it is experienced by others. Understanding of what works to address the issue based on their personal insight, what does not work, and what resources (formal or informal) are available.

Learning Objectives: • Define people with lived experience • Discuss shared understanding and organizational experiences related to people with lived experience •Explore current and historical culture of the community, and challenge MCH professionals to discover diversity by understanding intersectionality

The Power of Lived Expertise in Research and Evaluation: Child Welfare Edition. Year Developed: 2022. Source: Administration for Children and Families. Presenter(s): Bryan Samuels, Alex Wagaman, and Tiffany Haynes. Type: Webinar. Level: Introductory. Length: 43 minutes.

Annotation: Individuals with lived experience collaborate with agencies in conducting and leading research and program evaluation findings to inform policy and practice. This video focuses on key considerations to sustain research and evaluation partnership with people with lived expertise and minimize harm, as well as offering concrete strategies to collaborate and share power with youth and families in the practice and process of data collection, research (including Participatory Action Research/Youth Participatory Action Research), and evaluation.

Learning Objectives: • Name key considerations to sustain research and evaluation with people who have lived experience. • Describe Participatory Action Research. • Employ strategies to collaborate and share power with people who have lived experience.

A New Approach to Assessing Family Engagement in Health Care Systems. Year Developed: 2019. Source: Lucile Packard Foundation for Children's Health. Presenter(s): Beth Dworetzky; Nanfi Lubogo; Susan Chacon. Type: Webinar. Level: Intermediate. Length: 60 minutes.

Annotation: Health care providers, payers, and systems serving children, youth and families increasingly focus on family engagement as a strategy to improve health care delivery, enhance consumer and provider satisfaction, and reduce costs. Assessing how well an organization or agency is engaging families is a critical step in achieving these goals. A recent issue brief from Family Voices, A Framework for Assessing Family Engagement in Systems Change, proposes four domains of family engagement – representation, transparency, impact and commitment. Join us as we explore this framework, share models of success and discuss common barriers to incorporating meaningful family engagement in systems-level initiatives. It is recommended that attendees read the issue brief prior to the event.

Measuring Family Experience of Care Integration to Improve Care Delivery. Year Developed: 2017. Source: Lucile Packard Foundation for Children's Health. Presenter(s): Hannah Rosenberg, MSc; Rebecca Baum, MD. Type: Webinar Archive. Level: Introductory. Length: 31 minutes.

Annotation: The family perception of care integration is essential in identifying opportunities to improve processes of care coordination and care management. This June 15 webinar introduced the Pediatric Integrated Care Survey (PICS), a validated instrument developed by Richard Antonelli, MD, MS, Medical Director of Integrated Care at Boston Children's Hospital, and his team. The instrument assesses family experience of care integration. It asks family respondents to identify the members of their child's/youth's care team and report on their experiences with integration across disciplines, institutions, and communities. A video and presentation slides are available.

Children and Youth with Autism Spectrum Disorder and Other Developmental Disabilities. Year Developed: n.a.. Source: Association of Maternal and Child Health Programs. Presenter(s): n.a.. Type: n.a.. Level: Introductory. Length: n.a..

Annotation: This report, developed by The Catalyst Center at the Boston University School of Public Health, offers a brief description of selected provisions in the ACA that have implications for CYSHCN with ASD/DD.

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number UE8MC25742; MCH Navigator for $225,000/year. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.