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Displaying records 1 through 10 of 10 found.

Leading with Lived Experience: Informing Health Department Viral Hepatitis Elimination Programs. Year Developed: 2023. Source: NASTAD. Presenter(s): Eliot Davis, Tina Reynolds, Donté Smith, and Nick Voyles. Type: Presentation. Level: Introductory. Length: 75 minutes.

Annotation: This session at NASTAD's 2023 Annual Meeting is titled, "Leading with Lived Experience: Informing Health Department Viral Hepatitis Elimination Programs." During this session, panelists described how leading with lived hepatitis and substance use experience is central to advancing hepatitis elimination as they explored considerations for enhancing relationships between state health departments, CBOs, and people who use drugs. Attendees were invited to engage in discussion with peer jurisdictions, strategy leaders, and people with lived expertise about opportunities and tangible strategies for how to equitably invest in leaders with lived expertise as an essential factor to eliminate viral hepatitis.

Learning Objectives: • Establish how to create a network of partnerships that include people with lived experience. • Describe how to create the support structure to have people with lived experience lead the work.

Authentic Engagement: People with Lived Expertise Shaping Homeless Programs and Policies. Year Developed: 2023. Source: Community Action Partnership. Presenter(s): Josh Johnson, Samantha Wood, La’Toya Cooper, and Jon DeCarmine. Type: Webinar. Level: Introductory. Length: 60 minutes.

Annotation: Homeless service providers and systems are increasingly turning to those with lived experience of homelessness to help shape policies and inform programmatic reforms to improve the effectiveness of their interventions in reducing homelessness. This session, presented by the National Alliance to End Homelessness, will feature individuals with lived expertise who are serving to drive policy change through authentic collaboration with advocates and providers.

Learning Objectives: • Define the problems within policies and services. • Identify key components of authentic engagement. • Recognize the importance of power building and how to shift a culture. • Demonstrate how engagement can shape programs and policies.

Collaboration and the Early Years: Exploring the Benefits and Challenges of Integrated Working. Year Developed: 2022. Source: Anna Freud National Center for Children and Families. Presenter(s): Marvyn Harrison, Claudia Coussins, Sanjana Jio, and Abigail Wright. Type: Panel Discussion. Level: Introductory. Length: 90 minutes.

Annotation: In line with policy developments around Family Hubs, Integrated Care Support and the development of the NHS Long Term plan, it’s becoming more common for early years settings to work more closely and share knowledge with a variety of different services and organizations. Fantastic collaboration is also happening at a community and grassroots level. To recognize this shift, we will be hearing from professionals and experts by experience as they explore the benefits and challenges of partnerships and multi-agency working in relation to improving outcomes for infants, children, and their families.' This webinar will also be introducing a new and more collaborative approach for Early Years in Mind which will put collaboration and co-design of resources at its heart. 

Learning Objectives: • Illustrate the importance of cultural change in collaboration. • Appreciate the need to connect with new families in the discussion. • Explain how to bring parts of the system together for collaboration. • Review examples of co-production.

Centering Lived Experience: Methodology of Away from Home. Year Developed: 2021. Source: Think of Us. Presenter(s): Sarah Fathallah, Sixto Cancel, Bobbi Taylor, and Sarah Sullivan. Type: Webinar. Level: Introductory. Length: 90 minutes.

Annotation: This webinar presents stories from the research team behind Away from Home. It describes how the team centered lived experience in the methodology of the project from beginning to the end: from the formation of the research team and the participant recruiting to the creation of a lived expert peer review board and the design of the project launch. Speakers provide inspiration for how to center lived experience in new projects and in everything that child welfare touches.

Learning Objectives: Understand how people with lived experience are centered in: • The scoping of the study and forming the team; • The research design and planning; • Recruiting participants for the study; • Onboarding research participants; • Conducting the research; • Compensating participants; • Validating findings; and • Disseminating findings.

Shared Decision Making - Empowering Patients. Year Developed: 2019. Source: Aplastic Anemia and MDS International Foundation. Presenter(s): Susan Z. Berg. Type: Webinar. Level: Introductory. Length: 52 minutes.

Annotation: In this webinar, Susan Berg from the Center for Shared Decision Making at Dartmouth - Hitchcock explain what is shared decision making and how patients/caregivers can work with their medical team to make decisions regarding their healthcare. (June 19, 2019)

Learning Objectives: • Report what shared decision-making is. • Demonstrate how to partner with your healthcare team to make decisions. • Practice methods to help make decisions regarding healthcare. • Indicate how one can be empowered to stand up for their health.

Engaging Diverse Families in Leadership for Systems Change. Year Developed: 2018. Source: Family Voices and National Center for Family-Professional Partnerships. Presenter(s): n.a.. Type: Webinar Archive. Level: Intermediate. Length: 90 minutes.

Annotation: Family organizations, professionals, and state and local agencies are increasingly seeking to engage diverse families in leadership to improve systems. This webinar provides tools and strategies to: assess and improve agency and staff readiness; identify, recruit, prepare, engage and support diverse family leaders in meaningful leadership roles; recognize family leader contributions; become an organization more focused on and capable of supporting diverse leadership. The webinar was hosted by the National Center for Family Professional Partnerships (NCFPP) and presented by Diana Autin of the Statewide Parent Advocacy Network (SPAN). A video and slides are available.

Participating in Advisory Groups. Year Developed: 2017. Source: Family Voices and National Center for Family/Professional Partnerships. Presenter(s): n.a.. Type: Webinar Archive. Level: Introductory. Length: 68 minutes. List of resources

Annotation: Savannah Logsdon-Breakstone from the Autistic Self Advocacy Network shares what youth self-advocates need to know in order to serve on boards and other groups. What can youth expect? How can I participate in meetings? Savannah shares tips and strategies to help youth leaders get involved and get the most out of these experiences. A video and slides are included.

Family Leaders Engaging with Title V Programs and the Block Grant Process. Year Developed: 2017. Source: Family Voices and National Center for Family/Professional Partnerships. Presenter(s): n.a.. Type: Webinar Archive. Level: Introductory. Length: Series; various lengths.

Annotation: Hosted by NCFPP, in partnership with the Association for Maternal and Child Health Programs (AMCHP). A panel of 3 F2F family leaders (Allison Gray, CA; Natilie Wooldridge, AR; Nanfi Lubogo, CT) shared their experiences and strategies in engaging with their state Title V programs. NCFPP hosted a follow-up discussion on April 12, 2017. Materials distributed included examples of partnering with Title V shared by SPAN (NJ F2F/SAO) Two recordings, slides, and several handouts are included.

Achieving True Partnership: Integrating Family Engagement in Systems of Care. Year Developed: 2017. Source: National Center for Medical Home Implementation, National Center for Family Professional Partnerships, Bright Futures National Center. Presenter(s): Deborah Garneau MA, Cornelia Deagle PhD MSPH, Barbara Kahler MD FAAP, Dana Yarbrough. Type: n.a.. Level: Intermediate Advanced. Length: 56 minutes.

Annotation: This webinar identified practical strategies to facilitate partnerships between systems of care, focusing specifically on collaboration between Title V programs, state American Academy of Pediatrics Chapters, and family leadership organizations. Faculty presented lessons learned from a state-wide medical home implementation project with family leadership.

Learning Objectives: • Define and describe the characteristics of family engagement at the systems level. • Identify practical strategies and tools that encourage and measure family engagement at the systems level, including partnerships between Title V programs, state AAP chapters, and Family-to-Family Health Information Centers. • Describe evidence=based and evidence-informed practices for family engagement at the systems level.

Engagement of Family Leader Organizations in Non-CSHCN Initiatives. Year Developed: 2015. Source: National Center for Family Professional Partnerships. Presenter(s): Malia Corde, Amy Nienhuis, Jane St. John, Susan Bird. Type: Webinar. Level: Intermediate. Length: 53 minutes.

Annotation: Family involvement is essential to the successful development and adoption of health-related programs that affect families. Family engagement is now being measured across MCH systems and not just within programs for children with special health care needs (CSHCN). Family organizations serving families of CSHCN are already actively engaged in partnerships around how to promote family engagement in health care beyond CSHCN populations. This webinar was a panel presentation of three Family to Family Health Information Centers (F2Fs) and Family Voices State Affiliate Organizations (FV SAOs) highlighting examples and lessons learned from their successful partnerships and collaborations on Non-CSHCN initiatives. Speakers: Malia Corde of New Jersey's Statewide Parent Advocacy Network (SPAN) will highlight three projects, funded through the NJ Department of Health and NJ Department of Human Services, that focus on improving pregnancy outcomes and the prevention of birth defects and developmental disabilities. Amy Nienhuis of Family Connection in South Carolina will discuss elements of her organization's state contract with the South Carolina Department of Health and Environmental Control that reach beyond CSHCN populations. Jane St. John and Susan Bird of Missouri Family to Family will highlight an evolution of partnerships with stakeholders including Missouri's Early Childhood Comprehensive Systems and Maternal, Infant, and Early Childhood Home Visiting which have resulted in increased family involvement in several initiatives across the state.

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number UE8MC25742; MCH Navigator for $225,000/year. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.