Improving the System of Services for Children and Youth with Special Health Care Needs: Findings from a Review of the State Implementation Grant Program. Year Developed: 2012. Source: U.S. Maternal and Child Health Bureau. Presenter(s): Lynda Honberg; Kathleen Watters. Type: Narrated Slide Presentation. Level: Intermediate Introductory. Length: 90 minutes.
Annotation: This presentation provides a broad overview of the nature and needs of the population of children and youth with special health care needs (CYSHCN) within the context of MCHB’s values and tenets for the system of care. Specific topics covered include definition of the population; the legislative and policy basis for the Title V (SSA) role in serving the CYSHCN population; and concepts and components of systems building, including quality and accountability/measurement. Parent, federal and state policy perspectives are incorporated into the presentation narrative, as well as examples of states’ systems endeavors. The 60 minutes of presentation is followed by a 30-minute Q&A discussion.
Special Instructions: Listeners may wish to toggle to 00:5:05 on the video time stamp as the beginning segment involves only participant introductions.
Every Child Deserves a Medical Home/Family-Centered Care [YouTube Channel]. Year Developed: 2012. Source: American Academy of Pediatrics. Presenter(s): n.a.. Type: Video. Level: Introductory. Length: 20 minutes.
Annotation: AAP Medical Home’s channel houses a compilation of videos developed by the National Center for Medical Home Implementation. “Every Child Deserves a Medical Home” includes several short feature narratives presented by pediatricians, other healthcare providers, and families who – in their own words – describe what “medical home” means to them. These videos discuss the key constructs in evaluating a medical home, including team-based care, coordination, and quality improvement.
Special Instructions: Look for the videos showing a poster in the background with the slogan "Every Child Deserves a Medical Home" (20 videos, ranging in length from .37 minutes to 3.31 minutes each).
Patient- and Family-Centered Care: From Principles to Practice. Year Developed: 2010. Source: Wisconsin Children and Youth with Special Health Care Needs Program and Waisman Center University Center for Excellence in Developmental Disabilities. Presenter(s): William Schwab, MD. Type: Webcast. Level: Intermediate Advanced Introductory. Length: 45 minutes. Handout
Annotation: This webcast, part of the Wisconsin Medical Home Webcast Series, describes the principles of patient- and family-centered care, and explains how primary care providers can move from principles to practice in providing patient- and family-centered care.
Learning Objectives: • Be familiar with the principles of patient and family-centered care in the Medical Home. • Know the tips that turn these principles into practice.
Special Instructions: This video requires you to install Microsoft Silverlight. If you are experiencing technical difficulties, please check your computer capability: click the Help tab in the TRAIN navigation bar, then click "Test Your Environment" on the left-hand menu.
Increasing Meaningful Partnerships between Families and MCH Partnerships [Cultivating Family/Professional Partnerships]. Year Developed: n.a.. Source: Maternal and Child Health Public Health Leadership Institute. Presenter(s): Eileen Forlenza. Type: Narrated Slide Presentation. Level: Intermediate Advanced. Length: 30 minutes.
Annotation: In this 30-minute presentation, Eileen Forlenza, a nationally renowned family leader and speaker on Children with Special Health Care Needs (CSHCN), addresses four critical strategies to establish meaningful partnerships between families of CSHCN and MCH professionals. The focus of the lesson is on the importance of involving and partnering with families at all levels of programming and leadership in public health organizations—especially organizations that work with children and individuals with special health care needs. The presentation provides valuable skills to engage and empower families as well as considerations organizations should take into account in regard to quality improvement and shifting the role of the agency from a dependency model to an empowerment model. It also gives tangible tools to promote family leadership, participation, and inclusion in all areas of an organization.
Learning Objectives: • Understand how to create a shared vision. • Describe the progression of family leadership. • Learn how you can promote partnerships in public health.
Special Instructions: To access this learning opportunity, scroll down on the landing page to “Increasing Meaningful Partnerships between Families and MCH Partnerships” leadership module and click on “View Module Presentation.” Title on the first slide is "Cultivating Family/Professional Partnerships."
