Annotation: This webinar focus on how to operationalize family and youth leadership in all phases of SOC development and expansion. Presenters will share a framework with specific questions and strategies that can be used to guide the implementation of family- and youth-driven approaches. This webinar is part of the SOC Expansion Leadership Learning Community. Additional resources are listed on the youtube page.
Learning Objectives: • Understand the requirements and value of of youth and family engagement and leadership of systems of care (SOCs).
• Understand roles for youth and families at all levels.
• Learn about partnering with youth- and family-run organizations.
• Learn about the use of guiding questions as a framework for assessing and implementing youth and family engagement and leadership.
• Engage in question and answer discussion.
Annotation: Health care providers, payers, and systems serving children, youth and families increasingly focus on family engagement as a strategy to improve health care delivery, enhance consumer and provider satisfaction, and reduce costs. Assessing how well an organization or agency is engaging families is a critical step in achieving these goals. A recent issue brief from Family Voices, A Framework for Assessing Family Engagement in Systems Change, proposes four domains of family engagement – representation, transparency, impact and commitment. Join us as we explore this framework, share models of success and discuss common barriers to incorporating meaningful family engagement in systems-level initiatives. It is recommended that attendees read the issue brief prior to the event.
Annotation: The MCH community has a long-standing tradition of integrating family engagement into programs, research, and practice. Yet, tested and validated measures to improve and sustain the quality of family engagement in health services and research are lacking.
Learning Objectives: • Understand currently available measures of family engagement.
• Identify gaps in developing and utilizing these measures.
• Learn innovative strategies for engaging families in research.
Annotation: This webinar series for youth supports the identification of leadership as a journey and support understanding and learning in key leadership development areas.
• Webinar 1 & 2: Knowing Yourself as a Leader: These webinars provide short leadership development sessions. These first sessions explore how personal reflection and self-assessment helps each of us increase our understanding of our personal leadership style. They provide examples of reflection and assessment activities and include personal experiences from advocates for youth.
• Webinar 3 & 4: What is my Culture? What are my Values?: Each of us has a personal leadership style and leadership journey. This is shaped by personal values and culture. The next sessions in the leadership journey series focus on defining culture and values and how each connects to leadership. As we reflect on our own culture and leadership, we discuss how to engage in reaching health equity and building inclusive communities. Join us in this session for learning, reflection activities, and discussion.
• Webinar 5: Cultural Perspectives on Self-Care in Leadership: How do you create an environment that is supportive of each person’s values and cultural perspectives on self-care? The purpose of this session is to explore person-driven approaches to self-care. We also share concrete and inclusive practices that emerging young leaders can adopt that embrace diverse perspectives and collective approaches to community and self-care.
Videos and slides are provided.
Annotation: Family organizations, professionals, and state and local agencies are increasingly seeking to engage diverse families in leadership to improve systems. This webinar provides tools and strategies to: assess and improve agency and staff readiness; identify, recruit, prepare, engage and support diverse family leaders in meaningful leadership roles; recognize family leader contributions; become an organization more focused on and capable of supporting diverse leadership. The webinar was hosted by the National Center for Family Professional Partnerships (NCFPP) and presented by Diana Autin of the Statewide Parent Advocacy Network (SPAN). A video and slides are available.
Annotation: Engaging with families is vital to transforming the health care system and positively impacting the life course of vulnerable populations. Families have extensive experience in partnering with professionals to improve systems of care, are organized and connected across the country, and stand ready to assist at every level of next efforts for improvement. Learn how to meaningfully involve families at every level of health care systems and engage them as critical partners in designing policies that will improve care for all children.
Discussing, Families of Children with Medical Complexity: A View from the Front Lines, the lead author and experts in the field reviewed the article’s key content and shared thoughts on the implications of its recommendations.
A video and presentation slides are available. yyy
Working With Adult Allies.Year Developed: 2017. Source: Family Voices and Autistic Self-Advocacy Network. Presenter(s): Savannah Logsdon-Breakstone. Type: Webinar Archive. Level: Introductory
Intermediate. Length: 63 minutes.
Annotation: Savannah Logsdon-Breakstone from the Autistic Self-Advocacy Network explores how youth self-advocates and adult allies can collaborate effectively. What works best? What are the pitfalls to avoid? What makes a good ally? What can you do if things go wrong? Learn all this and more, from an advocate who has been on both sides of the table. A video and slides are available.
Participating in Advisory Groups.Year Developed: 2017. Source: Family Voices and National Center for Family/Professional Partnerships. Presenter(s): n.a.. Type: Webinar Archive. Level: Introductory. Length: 68 minutes.
Annotation: Savannah Logsdon-Breakstone from the Autistic Self Advocacy Network shares what youth self-advocates need to know in order to serve on boards and other groups. What can youth expect? How can I participate in meetings? Savannah shares tips and strategies to help youth leaders get involved and get the most out of these experiences. A video and slides are included.
Annotation: The family perception of care integration is essential in identifying opportunities to improve processes of care coordination and care management.
This June 15 webinar introduced the Pediatric Integrated Care Survey (PICS), a validated instrument developed by Richard Antonelli, MD, MS, Medical Director of Integrated Care at Boston Children's Hospital, and his team. The instrument assesses family experience of care integration. It asks family respondents to identify the members of their child's/youth's care team and report on their experiences with integration across disciplines, institutions, and communities.
A video and presentation slides are available. yyy
Annotation: The majority of parent peer support is provided to mothers who are often the primary person in the family to navigate systems of care for their children. Fathers also have a critical role in behavioral health, and for this reason the Family Leaders Learning Community (LC) is hosting a webinar to highlight the needs of fathers and unique outreach programs to support fathers. Join us to hear about two exemplary programs: Washington State Dad's Move describes themselves as Dadvocates, mentoring others, with voices of experience. Allegheny Family Network's program for dads, Fathers Involved Now (FIN), assists fathers in understanding the importance of becoming financially and emotionally involved in the daily rearing of their children.
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number UE8MC25742; MCH Navigator for $180,000/year. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.