One must be clear about what they are asking from people with lived experience. Although the project may change direction overtime, there needs to be at least a shared understanding of what is needed from the onset.
Watch the video below to start your learning and then access the links to use the Ready-Set-Go approach to deepen your knowledge and skills.
In this step, Shared Understanding, you may want to ask two questions:
1. What is your project or activity (describe with as much detail as possible)?
2. What are you seeking from people with lived experience
Partnership in project
Project consultant
Advisor
Ideas
Discussion
Buy In
Preferences
Something else
Linking to the MCH Leadership Competencies. A shared understanding of PWLE is a key component of the knowledge section of the MCH Leadership Competencies. Click the links below to access trainings that support the related sub-competencies.
8K2: The person-centered care perspective at the individual, organizational, and systems level in MCH policies, programs, or practice.
8K3: The family-centered care perspective at the individual, organizational, and systems level in MCH policies, programs, or practice.
Implementation. Remember, the key to effective partnerships with PWLE:
Shared decision making, involving self-advocates and/or the family, in planning and implementing activities.
Addressing the priorities of people with lived experience using a strengths-based approach.
Recognizing the agency of self-advocates in decision-making as they approach transition age, and across the lifespan.
Connecting people with lived experience to needed services.
Acknowledging that the effects of the SDOH, and broader systems of care, greatly impact individuals with special health care needs and developmental disabilities.
A Conversation on Engaging People with Lived Experience with Human Services Programs. Year Developed: 2022 Source: National Association for Welfare Research and Statistics Presenter(s): Chelsea Hall, Samantha Fields, Roger De Leon, Bright Sarfo, Melissa Lim Brodowski, Laura Erickson. Type: Webinar. Level: Introductory. Length: 90 minutes.
Person-Centered Care: Trust, Access, and the Service Experience. Year Developed: 2023. Source: JSI: Better Health Outcomes for All. Presenter(s): Kate Onyejekwe, Arij Banaja, Harikeerthan Raghuram, Katharine Bagshaw, and Loddy Abreu. Type: Panel Discussion. Level: Introductory. Length: 61 minutes.
Strategies to Include Family and Youth Voice. Year Developed: 2022 Source: Administration for Children and Families. Presenter(s): Carla Carpenter, Yolanda Fripp, Mary-Kate Myers, April Pieper Type: Webinar. Level: Introductory. Length: 30 minutes.
Family-Centered Care Training Brief. Year Developed: 2015. Source: MCH Navigator. Presenter(s): n.a.. Type: Interactive Learning Tool. Level: Introductory Intermediate Advanced. Length: Self-paced.
Family Advocacy and Involvement in Title V Programs. Year Developed: 2011. Source: South Central Public Health Training Center. Presenter(s): Rylin Rodgers, BA. Type: Video. Level: Intermediate. Length: 90 minutes.
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number UE8MC25742; MCH Navigator for $225,000/year. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.
