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The Affordable Care Act and Children with Special Health Care Needs: An Analysis and Steps for State Policymakers

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Date Developed: 1/27/2011. Source: National Academy for State Health Policy and the Catalyst Center. Presenter(s): Carol Tobias; Meg Comeau; Kathleen Farrell; Catherine Hess; Liz Fowler; Linda Peltz; Phyllis Sloyer; Steve Fitton. Type: Narrated Slide Presentation. Level: Intermediate Introductory. Length: 90 minutes.


This webinar focuses on the Affordable Care Act (ACA) as it relates to children with special health care needs (CSHCN) or children that are at-risk for chronic conditions that require more services than typical children. The speakers identify CSHCN-specific needs with respect to 1) universal, continuous coverage, 2) adequate coverage, and affordable coverage. For each of the three broad topics, relevant statutory and regulatory provisions are identified and explained, followed by discussion of opportunities and challenges. Steps state policymakers should consider to address needs of CSHCN in health reform are discussed. A companion report can be found at:

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number UE8MC25742; MCH Navigator for $180,000/year. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.